I want to apologize for leaving everyone hanging...but Ava is off of the vent and has been off since Wednesday afternoon. I didn't post because I didn't want to jinx anything and also because Nate and Kaden were down and I really haven't been on the computer much. I just caught up with all of the comments as well, Nate had already posted them. Thank you so much for all of the well wishes.
So, like I said Ava is off of the vent and seems to be tolerating it (knock on wood). She is on oxygen. I am so nervous for her. I feel bad because I continue to ask the nurses if she looks alright, if the doctors are satisfied with how she is doing, if this or that is normal for a baby her age. All of the answers have been "yes, " but I guess I have learned with Kaden that something could always change. I try and want to be positive, but I also don't want to get my hopes up. I continue to pray and thank God for all that he has carried Ava through.
Today, they looked at her vocal cords to make sure they were not paralyzed and they were fine!!!! She is also on the schedule to have an upper GI (to determine whether or not she has acid reflux) and a swallow study done probably tomorrow. She is sleeping really well today and seems to be quite comfortable. We haven't been able to hold her yet, but I am hoping that we will soon. She just needs a nurse who feels comfortable enough to let us hold her with her chest tubes in (maybe tonight??!!).
So, Nate and Kaden left again. These darn Fridays. We took Kaden to see Horton Hears A Who today and unfortunately had to leave early. Kaden did well, his battery however did not. We watched maybe 30 minutes of it. We asked a worker if she knew of any outlets in the theater. She looked but could not find one, she was really nice though and gave us 3 free passes to get in later. I do not know when we will go again, maybe next week. Nate will just have to bring down the gigantic battery that weights a ton. That should be fun to carry around, but we will do anything to make Kaden happy.
Again, I am so sorry to make everybody wait to hear what has been going on. Thank you for all of the prayers, please keep them going.
Do Not Worry
15 years ago
5 comments:
Way to Breathe AVA!!!! Your fears are justified Amy. But it sounds like things are going well.
Don't feel like a pain asking all those questions. I am sure the nurses and Dr.'s are all happy to answer yes to each and every one of them!!
Love you guys!!
Pam and Rhett
I am soooo glad Ava is doing better. I know where she gets her strength, and it is never far away. I am really proud of all of your family. So helpful and supportive, and many good friends also. Parents know their babies like no other ever could, follow your insticts. And if you step on a few toes alot the way, oh well, their your babies. The only stupid question is the one not asked. I am glad Ava is doing well. I miss Kaden also, he is so sweet and brilliant. Hugs, Thoughts and Prayers,
Hope Begnoche
Thank God! I have been thinking of you guys so much! Praise God that she is off the vent. What a huge step! Take care this weekend!
Kristy
That's wonderful! As I was told by the doctors, the farther out she gets, the better the odds are that she won't have to go back on. It's great that her vocal chords aren't paralyzed! That was the main reason Caden was on the feeding tube, so hopefully she won't have one of those either! Keep posting, cause we keep checking! I've told all of my family about you and your family, and they are anxiously awaiting updates as well. Keep it up Ava! :)
What a wonderful report! We have been anxiously awaiting for the update...Thank you! But I totally understand, so no pressure:)
This is a huge step in the right direction, we continue to pray for Ava's recovery!
Love to all!!!
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