I want to apologize for leaving everyone hanging...but Ava is off of the vent and has been off since Wednesday afternoon. I didn't post because I didn't want to jinx anything and also because Nate and Kaden were down and I really haven't been on the computer much. I just caught up with all of the comments as well, Nate had already posted them. Thank you so much for all of the well wishes.
So, like I said Ava is off of the vent and seems to be tolerating it (knock on wood). She is on oxygen. I am so nervous for her. I feel bad because I continue to ask the nurses if she looks alright, if the doctors are satisfied with how she is doing, if this or that is normal for a baby her age. All of the answers have been "yes, " but I guess I have learned with Kaden that something could always change. I try and want to be positive, but I also don't want to get my hopes up. I continue to pray and thank God for all that he has carried Ava through.
Today, they looked at her vocal cords to make sure they were not paralyzed and they were fine!!!! She is also on the schedule to have an upper GI (to determine whether or not she has acid reflux) and a swallow study done probably tomorrow. She is sleeping really well today and seems to be quite comfortable. We haven't been able to hold her yet, but I am hoping that we will soon. She just needs a nurse who feels comfortable enough to let us hold her with her chest tubes in (maybe tonight??!!).
So, Nate and Kaden left again. These darn Fridays. We took Kaden to see Horton Hears A Who today and unfortunately had to leave early. Kaden did well, his battery however did not. We watched maybe 30 minutes of it. We asked a worker if she knew of any outlets in the theater. She looked but could not find one, she was really nice though and gave us 3 free passes to get in later. I do not know when we will go again, maybe next week. Nate will just have to bring down the gigantic battery that weights a ton. That should be fun to carry around, but we will do anything to make Kaden happy.
Again, I am so sorry to make everybody wait to hear what has been going on. Thank you for all of the prayers, please keep them going.
Do Not Worry
9 years ago