Sunday, March 9, 2008


Last night Ava got a big girl's crib. Ok, so it's a cribette...but it is so darn cute, especially with her in it. This morning I came in and she was in a little sleeper. She is absolutely adorable. Her face looks like it's normal size again which makes her even cuter. You all are probably tired of hearing how cute she is, but she really's true. So, again, hopefully they will be able to start weaning her this week (from the vent.) This doctor doesn't want to rush her and risk stressing her out (thank you). I just hope the doctor coming on for this coming week agrees. It's hard to argue with a doctor who does this for a living. I am sure in some of these doctor's minds they think we are crazy for even trying to tell them what we think. I mean, who has the degree, right. Don't get me wrong...the doctors here are amazing...that's why we chose for Ava to come here. I just sometimes question my thoughts, if I am being paranoid, or if what I am seeing is real. Hey, after going through everything with Kaden and now Ava, I should just go to medical school...yeah right : ).

I am missing Kaden and Nate hard core and I am excited for them to get back up here. I can't wait to take Kaden to see Horton Hears A Who. I hope he loves it so I will have a reason to buy it when it comes out. Grandpa and grandma have had some experiences with Kaden and his trach that they haven't had to do in quite awhile. Yesterday after getting him ready for the day his trach popped out so they had to put in back in. Well then last night they had to change it because of a leak in his cuff which needs to be inflated while he is sleeping or nobody will get any sleep. When it is down (as it is during the day) he can make noise around it, but at night all you hear is a freight train and then beep, beep, beep from his alarm ringing off because of the low pressure. Oh well, it is good for them : )!!! I am sure they would rather just be there for all of the loving and hugs and kisses, but they have been really good at learning all of the little things which have turned out to be very useful!!!

I hope EVERYONE has a wonderful day! Thanks for all of your wonderful support.


Amy said...

I am so happy that you were able to hold Ava again. I bet it is making you anxious to see her in clothes and in a big bed. I know it would be me.
Kaden was so cute last night at the dance for Whit's mom. He was kinda pushing Daddy's buttons. Seeing just how far he could push. I know you probably don't think it's cute, but when it's not your kid, it is nice to see other kids do that too.
We have some more stuff to give to you guys. I think we are going to try and come down on Saturday. Otherwise we may come on Monday, as we are supposed to be going to the Great wolf Lodge with some friends. I am also going to bring you the jewelry catalogs so that you may look at them.
We go in the moring for our sono. I am anxious and nervous all at once. I haven't felt much for movement yet, but that is not terribly concerning me. I just can't wait to find out the gender.
If you need anything be sure to let me know. I would love to make a trip to K.C. and just talk or whatever. (Beats staying at home all the time:)
We continue to keep Ava and all of you in our prayers and daily thoughts. We will see you soon.

Caden said...

I'm glad that you got to hold her. It's always nice after prolonged periods! Slow and steady, things start looking up. Congrats!

Anonymous said...

I finally found your blog. I have been thinking and praying for you and your family. I ask Advocare how things are and they tell me what they know.
Just want to let you know that you are never far from my thoughts.
Thoughts and Prayers
Hope Begnoche, LPN and my family
Louis, Kyri, Racey and Daysha

Hope said...

I finally found you. I sent a previous comment under anonymous. I just wanted to give you hope and let you know that you and your family have never been far from my thoughts and prayers.
Hope, Louis, Kyri, Racey and Daysha Begnoche
Advocare Float Nurse