Last night Ava got a big girl's crib. Ok, so it's a cribette...but it is so darn cute, especially with her in it. This morning I came in and she was in a little sleeper. She is absolutely adorable. Her face looks like it's normal size again which makes her even cuter. You all are probably tired of hearing how cute she is, but she really is...it's true. So, again, hopefully they will be able to start weaning her this week (from the vent.) This doctor doesn't want to rush her and risk stressing her out (thank you). I just hope the doctor coming on for this coming week agrees. It's hard to argue with a doctor who does this for a living. I am sure in some of these doctor's minds they think we are crazy for even trying to tell them what we think. I mean, who has the degree, right. Don't get me wrong...the doctors here are amazing...that's why we chose for Ava to come here. I just sometimes question my thoughts, if I am being paranoid, or if what I am seeing is real. Hey, after going through everything with Kaden and now Ava, I should just go to medical school...yeah right : ).
I am missing Kaden and Nate hard core and I am excited for them to get back up here. I can't wait to take Kaden to see Horton Hears A Who. I hope he loves it so I will have a reason to buy it when it comes out. Grandpa and grandma have had some experiences with Kaden and his trach that they haven't had to do in quite awhile. Yesterday after getting him ready for the day his trach popped out so they had to put in back in. Well then last night they had to change it because of a leak in his cuff which needs to be inflated while he is sleeping or nobody will get any sleep. When it is down (as it is during the day) he can make noise around it, but at night all you hear is a freight train and then beep, beep, beep from his alarm ringing off because of the low pressure. Oh well, it is good for them : )!!! I am sure they would rather just be there for all of the loving and hugs and kisses, but they have been really good at learning all of the little things which have turned out to be very useful!!!
I hope EVERYONE has a wonderful day! Thanks for all of your wonderful support.
Do Not Worry
9 years ago