My poor baby...
Little Miss Ava Rae has not had a great afternoon/evening. She ended up back on the O2's and flow. She has been pretty fussy (of course after I wrote the previous post). I left for dinner, leaving her sleeping. I came back to a very fussy baby. Her nurse was trying to calm her down but it wasn't working. We then decided that I should try holding her (although when she first gets picked up she cries). I picked her up and put her in my lap and she stopped crying. She was retracting (pulling really hard while breathing) and very pale. I put her back into her bed because her O2 sats were dropping. While in bed her sats dropped down to the mid 50's. So that is how she ended up on the oxygen and flow.
After discussing with the doctor my concerns of Ava going through withdrawls and her horrible diaper rash the doctor decided to go back up a little on the dose of the two pain/sedation meds they have been decreasing. She has been running a little bit of a temp and having very frequent watery stools. Two of the signs of withdrawls along with the retracting and high heart rate...not to mention a couple of other things. I feel soooo bad for her. I wish I could take her place. Seeing the diaper rash alone makes my heart break for her. Right now we are trying diaper doo...although I haven't seen any improvement since we started it two nights ago. Kaden went through the same thing when he was here (his was a little worse) and we did not find any solution until we went home. Once we went home his rash (more like sores) went away and haven't returned. I hope she doesn't have to wait until we get home for it to go away, I couldn't even imagine how dreadful it has to be.
Ava got her increased methadone just a little bit ago and seems to be a little more calm. She is off of the O2s but on half a liter of flow and still retracting. She is sleeping peacefully. They did draw cultures to make sure she doesn't have an infection and collected urine to make sure she did not have a bladder infection or anything. We will not have the results for 48 hours. Please continue to pray for Ava's health and comfort. Thank you.
Do Not Worry
9 years ago