Darn sedation!!! I think this is what causes Ava to get into sticky situations. Every time she is sedated for a procedure she has trouble maintaining her sats and keeping her lungs fully expanded. It happens every time. Right now the doctors are debating whether or not they need to put her back on the vent. This time however, they will try using a mask rather than putting the tubing back down her throat. I do not like this at all, this is what Kaden went through before being trached (I am not saying Ava is going to be trached), and it made him stop breathing. So I imagine it forcing air into your lungs making it difficult for someone to exhale. I do not know how true this really is but that is why I think Kaden had stop breathing while on it.
Right now they are trying breathing treatments on her with the same concept, but it only last about 10 minutes. She is upset the whole time, so I can only imagine how mad she is going to be with a mask on 24/7. Then I see them having to give her more sedation and the vicious cycle will keep going and she will end up intubated. I am going to plead my "case" to the doctors and hope they agree, of course if they absolutely feel it is in Ava's best interest to be put back on the vent then that is what we are going to have to do. I want to do what is right, but I want her to be comfortable at the same time. As we all know, I am not a doctor, I am just a mommy trying to keep my baby girl happy but at the same time I want what is best for her. I trust the doctor and her judgement.
I just talked to the doctor and she said what I was thinking without me having to give my input. She did say that if it doesn't work what they may end up doing is intubating her because she will need it for her G-tube surgery anyway. This makes sense to me, but we still do not have a surgery date and I don't want her to just hang out on the vent. Only time will tell what is going to happen. I will keep everyone updated.
My two boys are coming up today!!! I can't wait. The Easter Bunny had stopped by Sunday and Kaden's goodies have been waiting for him. Lucky Kaden, two chances to find eggs...not that I think he really cares too much about egg hunting. I am not sure if we are going to get a chance to watch the movie this week, it just depends on how well Miss Ava is doing.
Please keep Ava in your prayers, she still really needs them.
Do Not Worry
8 years ago