Not much has changed the past couple of days except for the fact that they are weaning Ava's vent again. Not so much because they are going to take her off the vent in the next day or two but because they want her breathing rate setting low enough that she still has to work her lungs herself so they can stay "strong." Other than that we continue to just hang out. The longer and longer we stay here the more I start to worry about the outcome of everything. I worry about Kaden and if he feels neglected, I worry about our financial situation, and of course I worry about Ava.
This coming weekend my parents are going to be staying so that I can go home with Nate and Kaden. The Spongebob deal at the park I guess is this coming weekend so I will be able to go with the boys. I am excited to be able to go home. I thank everybody who has offered to come up here so I can go home. It is really sweet of all of you. Please continue to keep Ava in your prayers. It means a lot to us.
Do Not Worry
15 years ago
4 comments:
I am glad you will be able to attend! I am so very sorry about Ava being put back on the vent. Tuck had a hard time also, we found out they had nicked his diaphram during heart surgery and paralyzed it causing it to "flap" and cause problems with the lungs and fluid on them. Dont know if that has been looked at or not, I think they can tell on xrays, I am not sure. I know you are so very frustrated, I wish I could waive a wand and make it all better for you.
I am excited about Kaden spelling words. Do you use the Out of the BOx program? THey say they can read before they can talk with the program. We have it and are not very consistant with TUcker. I think it AWESOME that Kaden is doing so much spelling. I would love to meet him one day, along with you and your husband and precious little girl.
I will continue to pray for you and your family....that Ava will find her strength and get rid of the vent. Also for strength for you. Hugs to you----Karen
I am glad you are getting to go home this next weekend. Since we spent most of last year in KC without Abby and Maddy, my heart is going out to you. If I did learn anything from all of that it is this, it is not always the quantity you can spend with the child at home, it is the quality. And I have to say you and Nate do a magnificant job of making each visit with Kaden a "quality" visit. It is great that you get to take him to do fun stuff and also just being able to spend time cuddeling and reading books. I know that it still sucks and you fell pulled in both directions. Soon I pray you are all home as one big happy family!!!
Know that we are thinking of you and praying for you each and everyday and probably a millions times a day. We are praying for Ava's strength and for the strength of your family as well.
Love and Prayers
Megan
Amy I am so glad that you can go home for a couple of days with Nate and Kaden , Just try to relax and enjoy the time with the boys. Kaden is such a bright child and has just shown all the doctors up with all the progress he has made. Drive safe and the family is in our prayers. I hope Ava is off the vents soon we will keep the fingers crossed and say an extra prayer for that. Take care
Sherry Shefelton
Hi Amy...not sure if you remember me but I was up at CMH a lot with Matt and Megan (Bella's parents). I just wanted to let you know that we were thinking about you all and praying for Ava's healing. We will actually be up there sometime this week...we have a family member up there right now and I thought that if you needed to just go get a coke or something that I would love to do that with you...especially since your husband is at home. You can email at mama041502@yahoo.com. and if you need anything we are just 15 minutes away. I know getting a coke or something is small but I know from being there for Meg and Matt that it still means a lot so anytime...just let me know.
Thinking of you,
Bella's Aunt Amber :-)
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