Ava is going to have quite the busy day today. After getting a suggestion about what could be going on with Ava from another mom who's baby also has a hypoplastic heart, I talked to the doctor and questioned him about it. So today they are going to do an ultra-sound to look at the function of her diaphragm. I didn't realized that a heart baby's diaphragm could get knicked or something and cause it to be paralyzed. So, although she was off of the vent for a little while, she is having some of the same signs as this little boy. I guess that with a paralyzed diaphragm your lungs will retain some fluid which would make sense with Ava's left side. Maybe her left side of the diaphragm got knicked and that is what is causing her fluid build up....just a thought.
She is also scheduled for another ECO on her heart. They want to rule out any reason she is unable to come off of the vent due to her heart. She is also getting a dye study done on her PICC line (kind of like an IV). They have been having a lot of trouble drawing blood from it, so from there they will decide if they need to just take the old one out (she has had it since 2-1) and put a new one in. So as you can see little Miss Ava will have a long day, but in a way I am glad they are doing all of this...it might give us some answers we need.
Other than that, Ava has been doing alright. She was so sleepy yesterday, pretty much slept ALL day. I would rather her be sleepy than fussy...she seems more comfortable. I just hope that she is tired because of just that, and that it is not anything alarming. Thank you all for your prayers...please keep them coming!!!
By the way...
Congratulations to my cousin Tabitha and her husband Gary. I just found out that they are having twins!!! Good luck with everything. (I guess you kind of get stuck in your own world when you are at the hospital and everybody else keeps living their lives b/c this is the first time I heard anything about it!) : ) Sorry for the delayed congrats.
Do Not Worry
8 years ago