As I write this, I am sick to my stomach. Ava has just been re-intubated. She has been really fussy. When she was awake she was crying until she would fall asleep again. Tonight when I was holding her she just started getting really red...EVERYWHERE. At first I thought maybe she was hot, so I took her blanket half way off. Well, her body still felt chilly to me but she was sweating and the redness did not go away. So the nurse came over to look at her and called in the doctor. The doctor said it could either be a reaction to the blood that she had received earlier or due to respiratory distress. They did a blood gas and her CO2 was high. The doc came back in and stated that she was in respiratory failure and that she needed to be re-intubated. He continued by bringing up the dreaded talk. That's right, he said that we are getting in the territory of having to start to bring up the subject of traching her and sending her home with a vent. I was very unimpressed with his way of talking to me about it. He went on, kind of laughing may I add, to say that we would be one of the first families that they have who would have two babies on a vent at home (funny?). I am sure that he was trying to lighten up the mood but geez. He also stated that they would be looking into it because he knows how "amazing" we are with Kaden and that we have "perfected" it...I do NOT want this to be the reason for her being trached. I can not believe that the "talk" has come up. I will say that it is not in stone, that he did just mention it and said that he was going to look more into other things that could be the problem. I guess just actually hearing a doctor talk it about it now has put it in to reality that it is a possibility.
I guess, I am just really frustrated because Ava still has this fluid on her lungs. No one can really tell us why and evidently does not know the solution to resolve it. It's one of those things...in my heart I am screaming you are the doctor, fix her. But my mind knows that they don't necessarily have an answer to everything. Please just continue to pray for her, she really needs all that she can get.
Do Not Worry
9 years ago