Friday, May 2, 2008

One More Try...

Please keep Ava in your prayers today. At about three o'clock they are going to give Ava one more chance to be extubated. If she can not tolerate it they will go ahead and trach her. I will update later.

Kaden wants to help type, so I will let him tell you some things : )!!!
apple moo kaden smart movie blue walk ear quice kiss joe all done

So, I am not too sure what exactly it is that Kaden was trying to tell you. I will try to make some sense of it. The cow, apple, moo...well, I guess he is telling you that the cow moo's but not sure why he threw apple in the mix. Then he typed his name and I told him he was smart so he typed that. Then I think what he was telling you is that he is watching a movie...Blues Clues. I don't know where ear came from or even what the next word is...he kept signing something after typing it but I don't know for sure what he was trying to say. He typed kiss and then gave me a kiss and then added Joe and pointed to his movie...Joe on Blues Clues. Then from what you can read...he was all done. He is so helpful sometimes. I feel like he has sooo much to say. Last night the two of us were communicating and he was full of information. I just feel so bad for him at times...thinking of how frustrated it would be to not be able to get my point across or just tell someone exactly what is on my mind. I am so proud of him though, to be able to figure out a way to get his point across as clearly as he does.

What about the storms that blew through last night?? Geez. The tornado sirens went off twice yesterday evening and I was with Kaden by myself. Nate was up here at the hospital. The RMH manager was so sweet though, she ran up to our room both times to help me carry him and his stuff downstairs to the basement. Well, then I woke up around 2 this morning and looked outside. The wind was blowing sooo hard. Nate and I turned on the tv to see what was going on. They said that the winds were between 50-70 mph. CRAZY. It kind of scared me. There are so many trees down. I kept looking out the bedroom window because across the street the house has a porch swing. That thing was going to town, I was scared it was going to end up braking out the house window. Well, we survived...I probably lost 10 pounds running Kaden and his stuff up and down three flights of stairs!!! Well, I hope everyone who was caught in this storm stayed safe and didn't have too much damage.


Pam said...

Thinking of you, and praying that she tolerates being off of the vent. You are amazing, and ALWAYS in my thoughts and prayers.

We love you guys....

Pam and Rhett

Carey said...

We're praying for you so hard right now! Whatever happens, I know you will handle it with grace. You are so amazing. The other day I was complaining about lugging Chelsea's IV and pump around with me so she could get her antibiotic, it really gives me a tiny peek into your life of having so many supplies and medical care to do. You deserve a super mom award! Hey ... there's an idea hmmmm.

The Bryant Family said...

The storm was wicked, it woke us up about the same time and we are 30 min north of Mercy. We lost the trampoline and yard furniture and hunted for it this am....found it but trampoline is broken, gonna need some welding. I am glad it wasnt anything more. some people are without homes...those storms scare me to death! i hate them.
I will be thinking of you and saying extra prayers for Ava. Kaden does great spelling!!! And typing..WOW. I am very impressed.

Anonymous said...

I'm praying soooo hard!!! I hope she does great! She's such a little fighter! Love you all!!!!

Anonymous said...

Thinking about you hoping all went well today and that you went off the vent with no hitches. In our prayers always.
Joanie and Thomas and family

Smurfy said...

Could Kaden's word (quice) be him trying to say "juice"? That is probably what I would have thought he was trying to say.

My prayers are with you and your family. Hold on things will get better.