Well, we are still waiting to find out when the surgery date is. I believe we will find out tomorrow when everyone comes back from the weekend. I pray that it will be soon-. Ava is still doing fine, maybe not as well as when she first arrived, but she is still fighting. Unlike Kaden, Ava is getting too much blood/oxygen to her lungs. The docs want her sats around 88-92%, she was in between 96 and 100 so they had to put her under a hood (almost like an oxygen hood). Instead of receiving more oxygen, it gives her less than room air (room air being 21%, she is getting 16%). Her blood gases were slowly getting bad and they discussed putting her on the vent, but opted to try lasix first being that she had fluid building up around her heart and lungs. So far it seems to be doing the trick, please pray that it continues to work and that she will stay clear of the vent until of course surgery.
She is still gorgeous as ever. I am sorry that I haven't been able to post pictures, I have no way of doing it on the RMH computers. Micah, I thought Nate had your phone number to text a pic, but he said he didn't and for some reason I never saved it in my phone, so if you and Megan want to e-mail me your numbers I can always send you one. I believe everyone else received a text, if not I am sorry and if you want you too can send me your number and I will do so. Thank you all for the prayers, please continue to pray as she is not out of the woods yet.
P.S Kaden seems to be adjusting well to mommy and daddy taking turns going back and forth!!!! We were able to take him to Sesame Street Live yesterday (thanks to the RMH). After his inital fears...he absolutely loved it. It was so fun for Nate and I to see him enjoy something soooo much. We have lots of pics to post, hopefully I can send my memory card home and have my parents or sister do it.
Do Not Worry
8 years ago