Well, as suspected, the surgeon did not want to close Ava's chest today. She still has a lot of fluid she needs to get rid of. The doctors did start another med to help with that, yesterday. Other than that she continues to be doing what they want her to. She does seem to have her nights and days mixed up right now. The night nurses say she has been staying awake a lot during the nights and of course she sleeps during the day while Nate and I are here. We hope that gets switched around before she goes home : ). If not, oh well, we will take what we can get.
We have met another nice family here who's baby has a diaphragmatic hernia (like Kaden). He is still on ECMO, but is having surgery today to repair the diaphragm. Please add them to your prayers today. We know how hard it is to watch your precious little one go through something so difficult and to feel so helpless. Praying and trusting in the Lord is the only way to help get these babies through this as well as ourselves.
I know I say this with almost every post, but it comes from my heart and I do not know what else to say, but thank you for all of your prayers. This is what is keeping Ava so strong, as well as the both of us, so please keep praying!!!!
Do Not Worry
9 years ago