THREE BOYS WITH LOVE FROM ABOVE: Praying to come off ECMO

Wednesday, February 20, 2008

Praying to come off ECMO

Over the past few days the nurses weaned Ava's flow on the ECMO (heart bypass) machine from a flow of .700 to .03. This is an improvement from the last wean attempt. After a restless night we came into the hospital this morning around 7 a.m. and Ava appeared to be holding her own. Right now the surgeon and staff are in with our Ava attempting to take her off of ECMO while we wait in the parent room. If she can not tolerate coming off then the surgeon will connect her back to ECMO, but through the neck this time instead of directly into the heart. We will update as soon as we receive further information. Please pray for Ava's strength and health.

3 comments:

Anonymous said...: I just want you to know I am praying for your little Ava and your family! You don't know me but I read your blogs and want you to know you are in my thoughts and prayers.
Nancy; February 20, 2008 at 9:19 AM
The Bryant Family said...: I have been checking to see how it is going....i will continue to think of Ava and have a prayer in my heart for her.; February 20, 2008 at 10:21 AM
Anonymous said...: Nathan and Amy

I was just reading the latest update and things are sounding better. You are always on my mind and in my prayers. I have shared your blog with so many friends and loved ones. Your precious children have touched so many lives and everyone is praying for Ava. Kaden has been a wonderful big brother praying for Ava and sleeping with her picture, I think that is the cutest thing and so precious. Bless you all and stay strong. May God and his angels be with you. It is like the footprints in the sand. God is carrying you thru the tough times and walking beside you when needed.
Hugs and kisses go out to you all and prayers for Ava.
Love
Pamela and Megan; February 20, 2008 at 11:26 AM

A WALK TO REMEMBER

I walk to remember the steps you'll never take.
I carry you with me as I firmly plant my feet.
Our trek started long ago, before my belly swelled.
You were a love that grew-like butterfly wings that beat.
Your gentle flutters than became kicks upon which I would dwell.
And I would talk to you, sweet babe, about the world you soon would meet.
The sun always shown upon us then-when you were in my womb.
And I was eager to show you the world that would have been your home.
How you'd have loved the sun shining-blue skies without a cloud.
The autumn leaves turning-the snow falling all around.
The flowers in the summer,would have filled your eyes with smiles.
And the rain that might have fallen would have caused you great surprise.
You would have traveled far with me-holding me by the hand.
And I'd have shown you all I could-more than I can imagine.
You hold my heart tightly now, as thought we're holding hands.
How far we've traveled, little one-and my life with you has been sweet.
For I carry you in my heart as I firmly plant my feet.

By Kathyie Mayo
Lacrosse, Wisconsin

borrowed from ricefamily1999.blogspot.com

THE CHOSEN ONES
I had a dream the other night. It came to me so clear. I stood before the throne of God,afraid to come too near. God said to me, "I hear your prayers. There are answers you can't find. I brought you here to talk to me and help to ease your mind. "I said,"Well, yes, God, I am upset...About my special one. This punishment is awfully harsh...Whatever have I done?" God looked at me and shook his head, He said, "My Dear, you've got it wrong. I sent this special child to you because you are so strong. I searched and searched to try and find someone with a love so rare. Parents so unselfish they could give him that special care. I try to save my special gifts,like those you're speaking of,for a special kind of parents I call the 'Chosen Ones. 'Of all the ones to choose from,I know I've got it done...Parents who deserve my best,an honor you have won." -Unknown

We found this great poem on www.breuerfamily.com