Wednesday, February 27, 2008

Ok...tomorrow, hopefully

Ava's chest did not get closed today. Her surgeon was out sick for the day...so hopefully tomorrow. They did increase her feeds again and took her off of another med. She was awake earlier for me and cried most of that time. Poor baby, I feel so bad not being able to hold her and comfort her, but she finally feel asleep after about 30 minutes.

Kaden had an OT appt. today to work on feeding by mouth. He did really well, accepting direction from the therapist. Nate and I were very proud of him. She gave us a lot of tips to help him...which I think now we were doing a lot of things wrong. Oh well. He has another appt. next Thursday, I am excited to see how he is going to do. Well, Kaden wants to leave a message so here goes....

star boy joe sivfkoo ava cow kaden pig dog cat apple banana movjlbfx egj;
tmm,jkjjkjj j

So, there are a few words that he knows how to spell, the rest is Kaden typing like mommy. Instead of using one finger he uses all of his fingers and types fast. What a cutie. Well, I promised him that he could type more, so I will finish this post for now so he can type. Please continue to pray for Ava.

5 comments:

Mary B. said...

Thank you so much for allowing me to care for your little angel. She is such a precious girl. I can't wait to see her in your arms! And Kaden...I'd have to say, his dancing made my day today. I am also very impressed with his spelling. Rest well!

Isabella said...

Sorry Ava did not get closed today. Hopefully tomorrow. She looks so cute in there all surrounded by pink!! And Kaden, way to go buddy. You are such a super awesome kid!!
Praying for you always!!
Love
Megan

Gabi's Mommy said...

Better the sick surgeon stays away than take a chance of getting Ava sick. I know how disappointing it can be though. Keep your heads up, it will happen and when it does it will be the right time for it.

Way to go big boy Kaden. It is so exciting that even through all of the confusion he is still dtermined to progress as well:)
We may try to swing in this weekend. We will be back for a funeral...ugh! And Jason wants to personally get his resume out to a few places. We will see what time allows. But in the mean time...
As always, love and prayers!!!

Tyler Patrick Breuer said...

Great job Kaden! Love your typing! Too cute! Hoping everything goes as planned for tomorrow. You guys are getting closer and closer to soon be heading home. Keep smiling!
Heart hugs!
Kathleen

Anonymous said...

It is sad to hear that Ava was not able to get closed today. However, though that could be considered good news though since this will allow her to keep getting stronger, and if you have to take that one step back just think of the big steps that you have taken forward already. Go AVA. It is sad to see your precious little ones cry and you just want to pick them up and hold them but you can't, just reach out and comfort her the best that you do, because you are so loving and caring and Ava feels that in your touch and nows that you are there for her. You stay strong like I know you are.
Way to go Kaden on the tasting. You are such a big boy. Look at you go typing away on the computer (little showoff) you have come so far and touched all our hearts. Thinking of you all always. If you need anything just let me know and I will be there. Mom and Dad our planning to come down Friday afernoon to see you all. Take care, and give Ava and Kaden lots of hugs and kisses for me. Praying always for you!
Love Always, Pamela and Megan