Monday, February 2, 2009

Good News...

First of all, I am sorry that I didn't keep everyone updated. I am very tired and coming down with something...probably just a cold but I feel horrible. However it comes and goes and since we have been home it has come and not gone away. Oh, yeah that brings me to this...WE ARE HOME!!! I was very surprised, something I wasn't expecting. The doctor that was on the day that Ava passed, was actually in the PICU today. He came down to the surgery waiting room and asked us if we would feel comfortable taking Kaden home today if it was ok with the surgeon. Of course we said "YES".

Today started very early for us with little sleep from the night. I was very proud of Kaden though. He was in a great mood from the start. We got to the hospital and he had a blast playing with all the toys in the waiting room. They called us back and he was such a big boy...no tears!!! He might actually be getting the hang of all this hospital business : ). We had actually made a trip to the ER Sunday morning because his mickey-button had come out sometime before we woke up. The hole closes up so fast, and I wasn't able to get the replacement in. They got in in pretty easily though in the ER. Ok, so back to today. One of us was able to walk back with Kaden until he was sedated. I let Nate go thinking I might be too anxious. The OR nurse was amazing and Kaden really warmed up to her. She told him to tell mommy bye and he did without hesitation. I gave him kisses and a hug and then he looked at Nate and told him "bye-bye." He wasn't nervous at all. Nate still walked back with him and told me he was a big boy the whole time.

After we heard that we were able to take him home we met him outside of the recovery room. He was so drowsy and not in the same great mood he had been in. In fact, I think he hit me like...three times, just because. Or maybe he was mad at me for letting him go back there...who knows.

So to the good news...awhile back we heard that Kaden's vocal chords are paralyzed closed (letting him make noise, but not get air past them). We were told that most likely Kaden will always need a trach, but that he could come off the vent. Well, today after the bronch and another procedure (do not know how to spell) they found that Kaden had some scar tissue that went from one side of his vocal chords to the other. They cut that out. He also had some tissue built up that they cut out from his trachea. The surgeon stated that she believes that his vocal chords might work and that she wants to do another scope sometime soon when he is awake to see how well, if at all they work. She continued by saying that she is going to talk to Kaden's vent doc and recommend that we work hard at getting him off the vent and if everything goes well with the next scope that we start working on weaning him from the trach as well. I know this is probably coming out to be very confusing. I guess I am just saying that there is a possibility that Kaden can come off the vent and get rid of the trach. I do not know how to explain how happy Nate and I were to here this. I can not wait to be able to get this other scope done...expect for the fact that I know that Kaden will be very, very upset.

I wish I had my camera later on today. We stopped at Nebraska Furniture Mart and Kaden was riding in the cart. He was so grouchy, I can't blame him really. He ended up leaning over the handle and put his head on my belly. I look down a little later and he was out. So here I am, leaning over a cart, Kaden has his head on my belly (drooling may I add) and pushing it around without trying to disturb him. Very comfortable may I add. Nate tried to switch spots with me, but I guess his "belly" wasn't cutting it because Kaden woke up, reached for me and feel back to sleep on the belly.

I do have pictures that I need to get posted. I know I take forever to do this, but I will get it done one day. I am sorry if this is confusing or does not make sense, but I am too tired to proof read it.

17 comments:

Isabella said...

I am so happy to hear such wonderful news. Also that is great that they let you guys go home. I was really praying hard for Kaden and his procedure but also for you and Nate and having to be in the PICU.
This is so awesome, Kaden and Bella are going to wean off the vent and get decanulated!!!! I just know it. Wouldn't that be funny if they got decanulated at the same time ;).
Again I am so glad to see such good news. By the way, hillarious about Kaden sleeping on the belly.
Love and Prayers Always
Megan

adrianna york said...

That is great news I am so happy for you and I hope that it all works out. That was really neat of Kaden laying on your belly. I wish you all the best. You all are in my thoughts and prayers.
From Kim

The Peters said...

That is so great to hear that the surgery went well and the possibility that someday Kaden might not need the trach.

I hope you don't get sick and feel better!

The Bryant Family said...

I am so glad all went well and getting off the vent and possibly the trachea is AWESOME.
I guess probably you might have been gone alreayd when I called yesterday. I am so so glad it was a good quick visit. HUGS

Rachel said...

Well that is terrific news. I will pray that this is what will happen in the future and that Kaden will be able to live a life, soon without his trach.

What a brave little guy you have there! So proud of him!

Anonymous said...

Oh Amy!!! I am so excited for you guys! And so proud of Kaden for being such a big boy- and such a trooper through everything! I've always had a feeling Kaden would be able to come off the trach at some point. He's just such a strong kid and has proved doctors wrong so many times- including now! :)

I'm anxiously waiting for Brody's grand arrival! 1- because I can't wait to meet him but 2- I'm ready for you to be comfortable again! :) Keep us updated if you find out "the day" to expect him! We Love you so much!! Give Kaden big hugs and kisses from me and give Brody and pat on your belly! :)
Love,
Aunt Jen

Anonymous said...

Oh Amy!!! I am so excited for you guys! And so proud of Kaden for being such a big boy- and such a trooper through everything! I've always had a feeling Kaden would be able to come off the trach at some point. He's just such a strong kid and has proved doctors wrong so many times- including now! :)

I'm anxiously waiting for Brody's grand arrival! 1- because I can't wait to meet him but 2- I'm ready for you to be comfortable again! :) Keep us updated if you find out "the day" to expect him! We Love you so much!! Give Kaden big hugs and kisses from me and give Brody and pat on your belly! :)
Love,
Aunt Jen

Boeckman mommy said...

Awesome news!! That will so exciting for Kaden. We will keep our fingers crossed.

You had better get some rest. I always, even with my summer babies, seemed to catch a small cold and be totally exhausted before I went into labor. Seems as though labor healed me though as I don't remember coming home with a cold with the new baby. Won't be long. What will Kaden do without his "baby belly pillow"? Too cute.

Niff said...

That's such great news. I'm glad everything went well and they're ready to wean Kaden off the vent! I hope he can get rid of that trach soon too. ((HUGS))

My Three Sons said...

Well I got to hear this news yesterday but I still wanted to tell Kaden how happy and proud I am of him!!! What a blessing that he got to come home early.

So does this mean that you will rest up today??? :-)

Tell Kaden to keep up the good work and I just know that all of our prayers he IS going to be off the trach soon!! What a miracle this is.

I actually put Carson to bed at 9:00 last night and he slept til 7:30. Other than getting up to feed and give breathing treatments, I can honestly say I haven't slept this good in about 3 months.

Take care and let me know when the next appointment is!!!

sonnysgurl89 said...

oh wow that is such great news i cant believe that.... i hope all goes well and he will be able to get off the trach also...... and i am so glad to also read that things are going well with your new baby thats about to join us here on earth..... well i love ya amy and i love kaden too and i am wishing u so much luck with kaden and with your new baby boy..... cant wait to hear from ya......

leslie

Aimee said...

Yeah... this is all such great news! I'm so excited to hear that Kaden might not need the trach someday.

I wish you all the best... I hope that you get feeling better soon! Loves...

BiLlY, sAm, AnD bOyS!!! said...

I am so happy to hear this!!! We are in somewhat of a similar situation- we are working to get the trach out. and I think I told you before that tayte has paralyzed vocal chords as well!
kids are so amazing!!

The Rice Family said...

I cried when I read your post. How exciting (knock on wood). It is so amazing to watch Kaden grow stronger all the time. I know that he is pulling all his strength from the love of his wonderful parents. I'm sure little miss Ava is sending her love to Kaden also. I also laughed when I read your post because Mr. Kaden always seems to prove them docs wrong. Good for you Kaden. So glad you got to go home early.
Thinking of you
Andrea

Katie said...

What wonderful news! I can't even imagine how you must feel. I will pray hard that the next tests will bring more good news. Good luck Monday!

Carey said...

OMG, I can't wait to see those pictures!!! And what wonderful news about Kaden, that is just great!!!!

I'll be checking back for baby news ... hopefully it's been an uneventful day so far!

Erika said...

That's wonderful news, I'm so glad you were able to go home! That belly story is hilarious! I can just picture it. That's definitely one to remember!