First of all, I am sorry that I didn't keep everyone updated. I am very tired and coming down with something...probably just a cold but I feel horrible. However it comes and goes and since we have been home it has come and not gone away. Oh, yeah that brings me to this...WE ARE HOME!!! I was very surprised, something I wasn't expecting. The doctor that was on the day that Ava passed, was actually in the PICU today. He came down to the surgery waiting room and asked us if we would feel comfortable taking Kaden home today if it was ok with the surgeon. Of course we said "YES".
Today started very early for us with little sleep from the night. I was very proud of Kaden though. He was in a great mood from the start. We got to the hospital and he had a blast playing with all the toys in the waiting room. They called us back and he was such a big boy...no tears!!! He might actually be getting the hang of all this hospital business : ). We had actually made a trip to the ER Sunday morning because his mickey-button had come out sometime before we woke up. The hole closes up so fast, and I wasn't able to get the replacement in. They got in in pretty easily though in the ER. Ok, so back to today. One of us was able to walk back with Kaden until he was sedated. I let Nate go thinking I might be too anxious. The OR nurse was amazing and Kaden really warmed up to her. She told him to tell mommy bye and he did without hesitation. I gave him kisses and a hug and then he looked at Nate and told him "bye-bye." He wasn't nervous at all. Nate still walked back with him and told me he was a big boy the whole time.
After we heard that we were able to take him home we met him outside of the recovery room. He was so drowsy and not in the same great mood he had been in. In fact, I think he hit me like...three times, just because. Or maybe he was mad at me for letting him go back there...who knows.
So to the good news...awhile back we heard that Kaden's vocal chords are paralyzed closed (letting him make noise, but not get air past them). We were told that most likely Kaden will always need a trach, but that he could come off the vent. Well, today after the bronch and another procedure (do not know how to spell) they found that Kaden had some scar tissue that went from one side of his vocal chords to the other. They cut that out. He also had some tissue built up that they cut out from his trachea. The surgeon stated that she believes that his vocal chords might work and that she wants to do another scope sometime soon when he is awake to see how well, if at all they work. She continued by saying that she is going to talk to Kaden's vent doc and recommend that we work hard at getting him off the vent and if everything goes well with the next scope that we start working on weaning him from the trach as well. I know this is probably coming out to be very confusing. I guess I am just saying that there is a possibility that Kaden can come off the vent and get rid of the trach. I do not know how to explain how happy Nate and I were to here this. I can not wait to be able to get this other scope done...expect for the fact that I know that Kaden will be very, very upset.
I wish I had my camera later on today. We stopped at Nebraska Furniture Mart and Kaden was riding in the cart. He was so grouchy, I can't blame him really. He ended up leaning over the handle and put his head on my belly. I look down a little later and he was out. So here I am, leaning over a cart, Kaden has his head on my belly (drooling may I add) and pushing it around without trying to disturb him. Very comfortable may I add. Nate tried to switch spots with me, but I guess his "belly" wasn't cutting it because Kaden woke up, reached for me and feel back to sleep on the belly.
I do have pictures that I need to get posted. I know I take forever to do this, but I will get it done one day. I am sorry if this is confusing or does not make sense, but I am too tired to proof read it.
Do Not Worry
9 years ago