tag:blogger.com,1999:blog-5902675191615099501.post4254152184845990386..comments2023-07-08T05:25:28.548-05:00Comments on THREE BOYS WITH LOVE FROM ABOVE: Helping Tucker's Heart...mommy to Kaden, Brody and angel Avahttp://www.blogger.com/profile/07610063669468416297noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5902675191615099501.post-84485678574399943972009-03-10T13:28:00.000-05:002009-03-10T13:28:00.000-05:00Thank you Amy.....I appreciate you passing our sto...Thank you Amy.....I appreciate you passing our story along. There are so many kiddos with HPLH that this doctor is helping, every single day......I am upset at the fact that it was NOT given to us freely by Mercy, they know about this doctor and the procedure. I know it is all about "legal crap" but these are OUR kids they hold in their hands. WE depend on them for the best care of our kids. TO find out that there is another option instead of just waiting for the failure to happen with TUckers heart....he could be here for a long time, without heart issues. Even if they would have said, OFF THE RECORD there is a doctor you might look into,,,,,but they didnt. I have found though, now that they know (They being Mercy) we are going to Boston,,,it is marked in all of his charts. That was the fist thing the nurse that we know from the PICU said, she heard we were going to Boston....like they have a round table meeting about it. And I wonder if it is a "thank goodness Tucks mom found someone that had gone already and was given the information, or I think it is a waste or what exactly is said."<BR/><BR/>I kinda went on a spree there, sorry. I just pray that this is something for the future of Mercy...as you know it could change many lives. <BR/>HUGS to you.....KarenThe Bryant Familyhttps://www.blogger.com/profile/03052520075092513657noreply@blogger.comtag:blogger.com,1999:blog-5902675191615099501.post-62781994562542165162009-03-10T12:57:00.000-05:002009-03-10T12:57:00.000-05:00Thank you so much my dear, I appreciate it as well...Thank you so much my dear, I appreciate it as well as do Tucker and his family.Izzy, Emmy 'N Alexanderhttps://www.blogger.com/profile/01875610569065358042noreply@blogger.com